Welcome to Our Web site!

Our daughter was born with Ebstein’s Anomaly in 1996 and had her first surgery in May of 2007. After working with many of the top surgeons around the country, it’s clear that advances in new valves and new techniques in surgery will greatly improve the outcomes of kids and adults going forward. 

We will accomplish our goals by funding research to advance the diagnosis, treatment and prevention of this rare congenital defect.  Each year, we fund the most promising research under the direction of our Advisory Board. Our advisor will be doctors and institutions who are dealing with Ebstein's cases as well as other congenital heart defects on a daily bases.

Board Of Directors

Robert C. Ashford, President

Sarina Ashford, Secretary

Dr. Louis Hanstrote

Daniel Edgar

Monica Truumees

Medical Advisory Board

Contact Us

Ebstein's Anomaly Foundation

395 W. Macada Rd.

Bethlehem, PA 18017

(610) 659-9870

(610) 625-2415 Fax

rashford@ebsteinsanomaly.org

 

The Ebstein’s Anomaly Foundation is a 501 (c) (3) tax-exempt charitable organization.  We do not receive any government funding.  Our success is because of the generosity and passion of our supporters.