Ebstein's Anomaly Foundation

Ebstein's Anomaly Foundation Donate On-Line

Watch Arden's Speech at "Bringing Sunshine to Hearts dinner on June 19th

With healing arts, a mended heart June 18, 2008

Local Girl Gets Groundbreaking Heart Surgery

The heart of a champion. It's a phrase common in sports, but it could also apply to a young girl from Bethlehem. Arden Ashford has overcome a rare heart defect and is now hoping to help others with similar problems. WFMZ's Bo Koltnow reports.

Our Goal:

Our Partner

The goal of the Ebstein’s Anomaly Foundation is to fund research in order to advance the diagnosis, treatment and prevention of this rare congenital heart defect. This will benefit not only patients with Ebstein’s but also many others with related congenital heart defects.

ardenpia Our daughter was born with Ebstein’s Anomaly in 1996 and had her first surgery in May of 2007. After working with many of the top surgeons around the country, it became clear to us that advances in new valves and new repair techniques in surgery would greatly improve the outcomes for patients of all ages. Please visit our daughters web site

Each year we plan to fund the most promising research programs for heart defects related to Ebstein’s Anomaly. We will rely on a Medical Advisory Board, consisting of doctors and institutions who are experienced with Ebstein’s as well as other cases of congenital heart defects, to help us choose the programs. HOW TO HELP

We have partnered with The Children's Heart Foundation. This will allow us to quickly have access to their Medical Advisory Board of 31 leading doctors in the fields of cardiology, pediatrics and cardio-thoracic surgery. Their board's capability and vision are evidenced by the several projects they've recommended for funding which are already being used in hospitals, or are being tested and/or funded by the National Institutes for Health (NIH).

Since 1996, The Children’s Heart Foundation has funded 30 research projects with more than $2.5 million! The have also written and published a parent resource book, “It’s My Heart,” and chartered three chapters across the United States.

Congenital Heart Defect Forum Ebstein's Support Group-Multiply

www.ebsteins.org (Support Group in UK)

For those who have had surgery and those who are determining what to do about their Ebstein's Anomaly, the is a great place for people to help each other with chat, message board & group news 24x7. Talk to people from all around the world.

What is Ebstein's Anomaly

Contact Us

Ebstein's anomaly is a rare disease involving the right side of the heart. This disorder occurs when the tricuspid valve, that divides the two chambers of the right side of the heart, does not form correctly. Normally, the tricuspid valve separates the right atria and right ventricle. In Ebstein's anomaly, the valve forms too far down in the ventricle. This makes the right ventricle smaller and weaker than normal. Often there is also a connection between the left and right atria. The tricuspid valve usually has three parts that move freely. In Ebstein's anomaly, one or two parts of the valve get stuck to the walls of the heart and don’t move correctly, so blood can leak back in the wrong direction.

Wikipedia.org-Ebstein's Anomaly

Ebstein's Anomaly Foundation

2514 Flint Hill Rd.

Coopersburg, PA 18036

(610) 659-9870

e-mail: rashford@ebsteinsanomaly.org

How you can help

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