Links and News

New Cone Repair

conerepair

There is just a handful of heart centers in the United States that performs the advanced and innovative cone procedure for repairing the tricuspid valve in children with Ebstein’s anomaly.

In this procedure, extra tissues on the enlarged right side of the heart are folded up, and the malformed valve is surgically reshaped into a cone. The cone-shaped valve opens to a central blood flow and closes with full coaptation (joining, reuniting) of the leaflets.

Tricuspid valve replacement: Sometimes a patient’s tricuspid valve is too malformed to be repaired. In this case, the existing valve will need to be replaced with a mechanical valve or a bioprosthetic one made of human or animal tissue.

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Searches related to Ebstein's Anomaly

 

Support Groups

MD Junction- Ebstein's Anomaly Support Group

http://www.mdjunction.com/ebsteins-anomaly

Ebstein's Anomaly Support Group for Adults

http://health.groups.yahoo.com/group/EbsteinsAnomaly_Adults/

Congenital Heart Defect Forum

www.ebsteins.org

The Adult Congenital Heart Association (ACHA)

http://www.achaheart.org/

Canadian Adult Congenital Heart Network

http://www.cachnet.org/index.cgi

Canadian Congenital Heart Alliance

http://cchaforlife.org/

Grown Up Congenital Heart Patients Association

http://www.guch.org.uk/

The Canadian Congenital Heart Alliance (CCHA)

http://www.cchaforlife.org/

International Society for Adult Congenital Heart Disease (ISACHD)
http://www.isachd.org/

National Cancer Institute

http://www.cancer.gov/cancertopics/tobacco/smoking/

Quit Smoking Community

http://quitsmokingcommunity.org/