Privacy Policy

The Ebstein's Anomaly Foundation respects your privacy and is committed to the protection of your personal information. EAF's Privacy Policy summarizes what personally identifiable information we may collect, and how we might use this information. Please be sure to read this entire Privacy Policy before using or submitting information to this site. This Policy applies, in general, to all Internet sites operated by or on behalf of EAF.

Your Consent

By using this site, you agree to the terms of this Privacy Policy. Should you submit information to a EAF website, you are consenting to the collection, use, and disclosure of that information in accordance with this Privacy Policy.

Information You Provide

EAF collects information you knowingly and voluntarily provide to us, such as information you provide when signing up to receive e-mail alerts, completing a survey, or when asking us a question or providing feedback. This information may be personally identifiable information (i.e., name, address, telephone number, or e-mail). You will be informed what information is required and what information is optional.
EAF websites are not intended or designed to attract children under the age of 13. We do not knowingly collect personally identifiable information from visitors in that age group.

Information Collected Passively

When you visit a EAF website, certain anonymous information may be passively collected through the use of cookies, Internet tags, or other navigational data collection including log files, server logs, or clickstream. Your Internet browser automatically transmits to our websites some of this anonymous information, such as the URL of the website you just came from and the Internet Protocol (IP) address and the browser version your computer is currently using. You may set your computer to notify you when a cookie is sent, or to refuse cookies, but refusing to accept cookies may not allow certain features of our websites to work properly. Remember, the only personally identifiable information EAF collects is the information you voluntarily provide.

Use and Disclosure of Information

EAF will not sell or rent personally identifiable information to any third party for any purpose. EAF may use the services of a third party to provide EAF with support services in connection with our websites and such parties may, from time to time, have access to your personally identifiable information to enable them to provide those services to EAF. Please take note that EAF requires all such third parties to meet the same standards of data protection as EAF and are prohibited from using the information for their own marketing purposes.
EAF uses personally identifiable information only for the purposes for which you provide it. In addition, EAF may use collected information, both personally identifiable and anonymous, to improve the content of our websites, to customize our websites to your preferences, to communicate information to you (if requested), for our internal marketing and research purposes, to analyze statistics and trends, and for any other purpose specified.

How We Protect Your Personal Information

EAF is committed to protecting the security of your personal information. EAF takes reasonable steps to protect your information as you transmit it to our site and to protect such information from loss, misuse, and unauthorized access, disclosure, alteration, or destruction. Please keep in mind that no Internet transmission is ever completely secure or error free, and EAF cannot be responsible for breaches of security beyond our reasonable control.

Links to Other Websites

EAF websites may contain links to third-party websites as a service to you. Please note that this Privacy Policy does not apply to such third-party website.