It started off when I thought I was only getting another ultrasound to see if he was going to be a big baby like his older brother, there is when they had noticed something, I was sent off to the hospital right away, they scheduled me with a specialist, that was the hardest, longest day of my life, We were told that day he will NOT make it if we don't do surgery. I was told his valves are misplaced. 3 days later I had went for a stress test, and I guess what they saw made them take him that day, May 28th 2009 at 1:08 pm. By c-section, I didn't even get to see him, there was about 4-5 doctors surrounding him trying to put a breathing tube in him, they sent him off to intensive care where about an hour or 2 later they finally brought him to me. He was absolutely beautiful. I cried my eyes out knowing a couple hours later he will be taken, and so a couple hours later they rushed him off to A.I DuPont Children's Hospital, where a team was waiting for him. I had to wait 3 days in the hospital, longest 3 days of my life. I attached the picture of him (where you see the tubes and all the wires) that's what he looked like the first time I got to see him at DuPont, I literally hit the ground. All I kept thinking was why, Hes so innocent. they were explaining to me he has Ebsteins Anomaly. Where they are going to perform 3 major surgeries, and that is called the Norwood procedure. They will put a shunt in and close off the right side of his heart. On June 3rd, 2009 that surgery happened, it took 2 hours long. The first 24 hours was going to prove if he was going to make it or not. Then later on he required another surgery because he had build up fluid and needed a window to drain it. He was in the nicu for over a month, I didn't get to hold him until the very last week he was in there. He was then moved to 2b, the room I was staying in. He has had many echos, many x-rays, many IV sticks, many scary moments, when they had to put the breathing tube back in him. 2 and half months later, we were told we can go home, and I cant express the feelings I had that day, but yet very scared. This little guy only being 2 and half months old and has been putting up the biggest fight, I know his battle is not over. In November he will going for his second major surgery, then around his first birthday his 3rd. I wanted to share my story and put it out there, because you are not alone. I knew nothing about Ebsteins anomaly, and it was hard for me to find someone that has had it. My email is address is jessie_devault@yahoo.com I am here for anyone!! I want everyone to know, our children are strong, they have the will to go on!! And we stand by them 100%!!