ABOUT US

BOARD OF DIRECTORS

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Arden A. Ashford, President
Robert Ashford, Secretary
Sarina Ashford

Dr. Louis Hanstrote
Daniel Edgar
Monica Truumees

I was born with Ebstein’s Anomaly in 1996 and had my first surgery in May of 2007. After working with many of the top surgeons around the country, it’s clear that advances in new valves and new techniques in surgery will greatly improve the outcomes of kids and adults going forward.  I will graduated from Wake Forest University in 2018 and will continue to work with my foundation and help kids and families understand this rare condition. 

 

100% of our funds go to research.  We have no salaries and our goal is to help families fight this rare heart condition. 

 

OUR OFFICE

Ebsteins Anomaly Foundation

2059 Forge Run

Bethlehem, PA 18015

610-659-9870

 

© 2019 by The Ebstein's Anomaly Foundation

Call us:

610-659-9870